Indiana Medical Monitoring Project (INMMP)
Why the puzzle logo?
The idea is that INMMP is putting together a puzzle whose pieces include Access to Care, Quality of Life, Prevention Services, etc.
The piece that is missing is “you” which could be either the provider or patient.
What is the Medical Monitoring Project?
The Medical Monitoring Project (MMP) is a special HIV Disease surveillance project that is being funded by the Centers for Disease Control and Prevention (CDC) in collaboration with the Indiana State Department of Health (ISDH). Indiana is one of 25 state and city sites participating in the MMP. The project will link patient reported behavioral information collected by questionnaire with clinical information abstracted from medical charts. These two sources of information will be used to get the most accurate picture of health care service utilization and illnesses experienced among persons with HIV Disease in the state of Indiana.
The MMP aims to gain a deeper understanding of health-related experiences and needs of people living with HIV Disease who receive HIV care in the U.S. The goals of the project are to: 1) provide a wide array of local and national estimates of behaviors and clinical outcomes of persons in care for HIV; 2) describe health-related behaviors; 3) determine accessibility and use of prevention and support services; 4) increase knowledge of the care and treatment provided; and 5) examine variations of factors by geographic area and patient characteristics.
People living with HIV Disease, HIV prevention community planning groups, Ryan White CARE Act planning councils and consortia, providers of HIV Disease care, and other policy makers and service planners may use MMP data for planning activities. MMP will provide valuable state and national estimates of health care utilization, quality of care, severity of need, and effectiveness of prevention messages. MMP data may help estimate resource needs for treatment and services for persons with HIV Disease. To be effective, programs must meet the current needs of the population. MMP data will provide contextual information on prevention, care-seeking, treatment, and risk behaviors which will aid in the design and improvement of HIV programs.
To implement the project, state and local health departments have identified all HIV care providers in their respective areas. A representative sample of these providers is then chosen. The health departments contact all sampled providers and later, patients are randomly selected from those providers. The MMP has two components: a personal interview and medical record abstraction. MMP staff invite each selected patient to participate in a face-to-face interview. The interview takes approximately 45 minutes and includes questions concerning their medical history, use of medical and social services, and risk behaviors. Trained MMP medical abstractors will then collect additional information from the patient’s medical chart, which complements the data from the interview. MMP will take measures to assure the project is not burdensome to providers or participating patients. State and local health department representatives conduct all data collection activities in order not to disrupt providers, their staff, or services to their patients. Participants are compensated for their time. All personal and health care information collected during the project is secure and confidential.
How will providers and patients be identified?
Indiana will use a two-stage sampling scheme. The first stage will randomly sample providers and the second stage will randomly sample patients from within providers. The sampling frame of providers will be defined so that the likelihood of selection will be based on the number of cases reported. A provider is defined as a hospital, clinic, or other health facility that keeps the patients' medical records. The sampling frame will be constructed based on providers identified in the HIV Disease Reporting System (eHARS). From each provider’s patient list, all patients who meet the specific eligibility criteria determined by the protocol will be included for sampling in the study. Eligibility and stratification variables will be determined in consultation with CDC.
What are the benefits of MMP?
The information obtained from the MMP will provide a consistent method for state and city health departments to measure important aspects of morbidity, access, and use of preventive services. It will help identify service gaps for people in care for HIV Disease and help focus more on provision of preventive services.
How can you help?
Patients, providers, and the community play a huge role in making MMP a success. Patients and providers who participate represent other patients and providers who were not chosen. If an individual is chosen, they are encouraged to participate. The success of the MMP depends on these individuals! If an individual is not chosen, they can still help by encouraging others to participate. Remember, these data will be used to represent patients getting care for HIV Disease in their state and across the country. MMP results can have a big effect on future HIV Disease prevention, care, and quality of life for persons living with HIV Disease. Everyone's participation is essential. Together, we can learn much more about the ever-changing nature of HIV infection.
The Indiana Medical Monitoring Project team would like
to thank the Houston Medical Monitoring Project
for allowing us to use their designs, layout, and
information in establishing these Web pages.